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Partners

The Catalyst Center

A national center dedicated to improving health care insurance and financing for children and youth with special health care needs (CYSHCN).

National Center for Community Based Services

A leadership and resource center designed to support states and communities in organizing services so families of children and youth with special health care needs (CYSHCN) can use them easily and families are satisfied. The implementation of community-based service systems is a key component of Healthy People 2010 as stated in its Objective 16.23: to increase the states and territories that have service systems for children with special health care needs. The Institute for Community Inclusion was awarded a cooperative agreement from MCHB in 2010 to operate this national center.

National Center for Cultural Competence

The NCCC provides national leadership and contributes to the body of knowledge on cultural and linguistic competency within systems and organizations. Major emphasis is placed on translating evidence into policy and practice for programs and personnel concerned with health and mental health care delivery, administration, education and advocacy.

National Center for Hearing Assessment and Management (NCHAM)

This National Resource Center (NRC) assists state agencies and other federal and non-federal partners in the development and operation of sustainable statewide Early Hearing Detection and Intervention (EHDI) systems.

National Center for Medical Home Initiatives for Children with Special Needs

The National Center of Medical Home Initiatives for Children with Special Needs provides support to physicians, families, and other medical and non-medical providers who care for children with special needs so that they have access to a medical home.

National Health Care Transitional Center for Youth with Special Health Care Needs

The project will assure that youth with special health care needs are prepared for their transition from pediatric to adult health care and that they experience a smooth and seamless transfer of care from pediatric primary care and specialty care to adult settings. NH’s Center for Medical Home Improvement was awarded the cooperative agreement in 2010 to operate this national center.

Agency for Healthcare Research and Quality (AHRQ)

The lead Federal agency charged with improving the quality, safety, efficiency, and effectiveness of health care for all Americans. As one of 12 agencies within the Department of Health and Human Services, AHRQ supports health services research that will improve the quality of health care and promote evidence-based decision making.

Healthcare 411 by AHRQ

The U.S. Agency for Healthcare Research and Quality’s Healthcare 411 audio news source provides practical health care information, research findings, and data to help consumers, health providers, health insurers, researchers, and policymakers make informed decisions about health care issues.

American Academy of Pediatrics (AAP)

An organization of 60,000 pediatricians committed to the attainment of optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults.

Association of Maternal and Child Health Programs (AMCHP)

A national resource, partner and advocate for state public health leaders and others working to improve the health of women, children, youth and families, including those with special health care needs.

Centers for Medicare and Medicaid Services (CMS)

Federal agency responsible for administering Medicaid. Provides funding for several F2F HICs.

The Child and Adolescent Health Measurement Initiative (CAHMI)

The Child and Adolescent Health Measurement Initiative (CAHMI) developed and maintains a number of quality measurement tools and strategies that assess the quality of care provided to children and young adults.

Data Resource Center for Child and Adolescent Health (DRC)

The Data Resource Center for Child and Adolescent Health provides online access to survey data that allows users to compare state, regional, and nationwide results – plus resources and personalized assistance for interpreting and reporting findings.

March of Dimes

An organization that supports comprehensive newborn screening for all babies in this country, regardless of their place of birth. We urge every state to screen every baby for at least 29 conditions. For each of these conditions, screening has a documented benefit to the child, and a reliable test that enables early detection is available.

Maternal and Child Health Bureau (MCHB)

Federal agency responsible to programs and policies for children and youth with special health care needs. Provides funding for several F2F HICs and several National Centers focused on health care.

National Center on Birth Defects and Developmental Disabilities (NCBDDD)

Federal agency that promotes the health of babies, children, and adults, and enhances the potential for full, productive living. Their work includes identifying the causes of and preventing birth defects and developmental disabilities, helping children to develop and reach their full potential, and promoting health and well-being among people of all ages with disabilities.

National Initiative for Children's Healthcare Quality (NICHQ)

An organization dedicated solely to improving the quality of health care provided to children through raising awareness, identifying best practices, and by providing tools and methods to improve care - at the practice, hospital, community, state and national level.

National Newborn Screening and Genetics Resource Center

An organization that provides information and resources in the area of newborn screening and genetics to benefit health professionals, the public health community, consumers and government officials.

State Title V CSHCN Departments

Contact information for State Title V CSHCN Departments responsible for administering health care programs for children and youth with special health care needs.