Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.


Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families--including those of cultural, linguistic and geographic diversity-in order to improve healthcare services and policies for children.  


Family Voices believes in:

  • Social justice and the promotion of health equity
  • Authentic family-centered care that recognizes family as the center of a child's life and as an equal partner in decision-making about all aspects of the child's care
  • Effective family/professional partnerships at the local, state, and national level
  • Inclusion and connection of underserved families representing the cultural, linguistic and geographic diversity of the population
  • Connected and informed Family Leaders and Youth Leaders as powerful change agents
  • Children and youth with special needs and their families becoming empowered self-advocates
  • Family engagement in prevention, health and wellness in clinical and community settings.


  • Develop family and youth leaders, particularly those from underserved and underrepresented populations
  • Maintain and strengthen Family Voices' leadership role for children and youth with special health care needs (SHCN) and disabilities through advocacy and partnerships
  • Create and support policy positions for children and youth with SHCN and disabilities
  • Connect and enhance a vibrant national network of family organizations that reflect the diversity of the population they serve
  • Maintain and strengthen organizational structure and capacity