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October 13, 2010

Through its policy team in Washington, DC, Family Voices advocates for federal legislative and regulatory policies that will benefit children and youth with special health care needs (CYSHCN) and their families. 

Our main policy goals include:

1.      Family-to-Family Health Information Centers, information and referral centers that help families of children and youth with special health care needs to navigate the complex health system.

2.      Affordable Care Act,

3.      Medicaid,

4.      the Children's Health Insurance Program (CHIP),

5.      the Maternal and Child Health Block Grant,

6.      TRICARE (for military families),

7.      Supplemental Security Income

8.      Zika research and programs

 

These goals are accomplished through:

  • testimony and letters to Congress about legislative proposals,
  • formal comments to the administration about proposed regulations, and
  • visits with congressional and administration staff,
  • supporting family leaders across the country in educational efforts to help Members of Congress learn about the needs of CYSHCN and their families
  • partnerships with national child health and disability organizations, such as the Consortium for Citizens with Disabilities, The Arc, Autism Speaks, the March of Dimes, Easter Seals, the American Academy of Pediatrics, and the Children's Hospital Association, and others.