2014 Family Leadership Meeting and Legislative Reception: The Power of Partnerships

The Power of Partnerships

Family Voices’ Family Leadership Meeting
May 18-21, 2014
McDermott Building, Washington, D.C.

Meeting Slide Show



McDermott Will Emery

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Lucile Packard Foundation for Children's Health

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Child and Adolescent Health Measurement Initiative

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Children's Hospital Associations

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Lake Research Partners

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National Center for Children's Vision and Eye Health at Prevent Blindness America

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Health Services and Resource Administration



Highlighted Materials

The Power of Partnerships - 2014 Family Leader Meeting Program Book

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2014 Activities and Accomplishments of Family-to-Family Health Information Centers

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From the Heart: Honoring Family Voices Legislative Champions


About the Meeting

The Power of Partnerships brought together an energetic group of family leaders from FV State Affiliate Organizations and Family-to-Family Health Information Centers to share their knowledge, experiences, and best practices in helping families of CYSHCN. Family leaders were joined by a stellar cast of national experts to both gain a national perspective and provide the family perspective on children's issues, the disability landscape, upcoming issues in health care, emerging issues and more! Over 120 participants took part in workshops to learn more about:

  • Promoting health and wellness through the ACA
  • Health literacy & helping families navigate health insurance
  • Measuring family engagement: re-envisioning MCH 3.0
  • Partnering to advance health care financing
  • Sustainability
  • Partnering to reach and serve diverse families
  • Policy Advocacy
  • Data – Making an impact
  • Health and wellness best practices
  • Social Media
  • Family-Centered Care
  • Eye Health Resources
  • Rural Families
  • Positioning Family leadership at the state and national levels

The warm and inviting ambience of the meeting space, generously donated by the law firm of McDermott Will & Emery, set the tone for enthusiastic networking and informative, interactive discussions with presenters. Examples of feedback from participants include:

  • “Great sessions, great venue, great networking!”
  • “It was an extremely useful for me to spend time working with and getting to know the other F2F directors and family support professionals.”
  • “As a first time attendee I felt that experienced leaders were incredibly welcoming and offered a wealth of knowledge.”

Legislative Reception

As part of this 3-day meeting, Family Voices hosted a reception, From the Heart – Honoring Family Voices Legislative Champions, to recognize and acknowledge thanks for the efforts of six individuals who have made significant contributions in children’s health: Senator Tom Harkin, Senator Orrin Hatch, Senator Robert Menendez, Representative Frank Pallone, Jr., Representative Henry Waxman, and Senator Ron Wyden.

New Family Voices Initiatives Announced

Family Voices launched two important initiatives at the meeting:

  • Polly Arango Mentoring Initiative:
    Support to be awarded to a Family Voices State Affiliate in preparing families from diverse cultural and linguistic backgrounds to join a new generation of family leaders that reflects the growing diverse populations within states and our nation
  • One in Five Campaign:
    A Family Voices National Membership & Public Awareness Campaign

Meeting Materials


  • The Honorable Michele Grisham Lujan
  • Hawai‛i MCH LEND Program
  • Hawai‛i Pediatric Association Research and Education Foundation
  • Association of Maternal & Child Health Programs
  • Community Catalyst
  • APEX
  • Family Voices Board of Directors
  • Catalyst Center
  • DeLong Lithographics
  • Statewide Parent Advocacy Network of New Jersey
  • Sputnik Moment
  • National Center for Medical Home Implementation
  • National Center for Hearing Assessment and Management
  • National Institute for Children’s Health Quality
  • Family Voices Staff
  • Family Voices of Indiana
  • New Hampshire Family Voices
  • Youth Transitions Collaborative
  • Paul Newacheck