May 17, 2011

HHS awards $4.9 million to support families of children with special health care needs

US Dept of Health and Human Services   ·  Link to Article

HHS Secretary Kathleen Sebelius today announced $4.9 million in new and continuing grants to support the Family-to-Family Health Information Centers, primarily non-profit organizations run by and for families with children with special health care needs. Funding for the centers was extended through 2012 by the Affordable Care Act.

Created in 2005, the centers are state-wide, family-led organizations that provide information, education, training, outreach, and peer support to families of children and youth with special health care needs and the professionals who serve them.

“In the last year, the work of these Family to Family Health Information Centers has had a real impact on the families, and community and state systems that serve them,” said Secretary Sebelius.  “After working with these Centers, more than 90 percent of the families surveyed,  reported they were helped in finding or navigating community services for their children with special health care needs.”

The Family-to-Family Health Information Centers are staffed by trained family leaders who have children with special health care needs, and expertise in navigating federal, state and local public and private health care systems. These Centers are also staffed by and/or linked with health professionals. HHS’ Health Resources and Services Administration (HRSA) oversees the program.

“More than 900,000 families of children with special health care needs were served at Centers in the past year,” said HRSA Administrator Mary Wakefield, Ph.D., R.N.  “And over 400,000 providers and other professionals were able to benefit from their services, making invaluable information regarding the needs of these children more widely available than ever before.”

Since the program’s inception, Family-to-Family Health Information Centers have served hundreds of thousands of families and health care providers.  Today’s funding will support 51 centers, of which six are newly HRSA-supported (Delaware, the District of Columbia, Connecticut, Florida, Indiana, and Oregon).  Each grant award is up to $95,700 per year.

Family-to Family Health Centers
Fiscal Year 2011 Competitive Awards

Raising Special Kids Phoenix Ariz.
Support for Families of Children w/ Disabilities San Francisco Calif.
Colorado Nonprofit Development Center Denver Colo.
PATH Parent to Parent/Family Voices of CT Northford Conn.
Advocates for Justice and Education, Inc. Washington DC
Delaware Family Voices, Inc. New Castle Del.
Family Network on Disabilities of Florida, Inc. Dunedin Fla.
Parent to Parent of Georgia, Inc. Atlanta Ga.
Hawaii Pediatric Association Research & Education Foundation Honolulu Hawaii
The Arc of Illinois Granger Ill.
Family Voices Indiana Dunedin Fla.
Families Together, Inc. Wichita Kan.
Bayou Land Families Helping Families Thibodaux La.
Federation for Children with Special Needs Roxbury Crossing Mass.
The Parent's Place of Maryland Glen Burnie Md.
Maine Parent Federation Augusta Maine
PACER Center Inc. Minneapolis Minn.
Curators, University of Missouri Kansas City Mo.
University of Southern Mississippi Billings Mont.
Parents, Let's Unite for Kids Hattiesburg Miss.
Exceptional Children's Assistance Center Davidson N.C.
Family Voices of North Dakota, Inc Edgeley N.D.
PTI Nebraska Omaha Neb.
NH Coalition for Citizens w/Disabilities Concord N.H.
Statewide Parent Advocacy Network of New Jersey Newark N.J.
Parents Reaching Out to Help Albuquerque N.M.
Family TIES of Nevada, Inc Reno Nev.
Parent to Parent of NYS Tupper Lake N.Y.
The Oklahoma Family Network, Inc. Oklahoma City Okla.
Oregon Health and Science University Portland Ore.
Parent Education & Advocacy Leadership Center Pittsburgh Pa.
Rhode Island Parent Information Network, Inc. Cranston R.I.
South Dakota Parent Connection, Inc. Nashville Tenn.
Tennessee Disability Coalition Portland Ore.
Texas Parent to Parent Austin Texas
Utah Parent Center Salt Lake City Utah
Virginia Commonwealth University Richmond Va.
Vermont Family Network Williston Vt.
Washington PAVE Tacoma Wash.
The Arc Wisconsin Disability Association Madison Wis.

Non-Competitive Awards

Stone Soup Group Anchorage Alaska
Family Voices of Alabama Inc. Little Rock Ark.
Arkansas Disability Coalition Little Rock Ark.
The University of Iowa Iowa City Iowa
Idaho Parents Unlimited Inc. Boise Idaho
Comm for Children w/ Special Health Care Needs Louisville Ky.
Family Voices of Ohio Columbus Ohio
Family Connection of South Carolina, Inc. Columbia S.C.
West Virginia Parent Training and Information, Inc. Clarksburg W.Va.
Parents Helping Parents of Wyoming, Inc Buffalo Wyo.


For more information on the program, and other HRSA maternal and child health programs, visit  For additional information on the Affordable Care Act, visit


The Health Resources and Services Administration (HRSA), part of the U. S. Department of Health and Human Services, is the primary Federal agency for improving access to health care services for people who are uninsured, isolated, or medically vulnerable. For more information about HRSA and its programs, visit