May 26, 2011

The Arc to Release Landmark Survey Findings

The Arc   ·  Link to Article

The Arc to Release Landmark Survey Findings: Still in the Shadows with Their Future Uncertain
Join The Arc on Tuesday, June 14th to hear first-hand the release of survey findings from the landmark FINDS (Family and Individual Needs for Disability Supports) study revealing new data showing that individuals with intellectual and developmental disabilities (I/DD) are still living in the shadows, with millions of them waiting to realize their full potential. Peter Berns, CEO of The Arc will lead the discussion, communicating what The Arc plans to do in light of the new data. Peter will be joined by Lauren Potter from the FOX show Glee, along with her mother Robin Sinkhorn who can provide a valuable perspective on the caregiving/family relationships which define the lives of many people with I/DD. Also, Dr. Charlie Lakin of the University of Minnesota and Dr. Ann Cameron Caldwell, The Arc’s Chief Research and Innovations Officer who conducted the survey will be on hand to answer any questions regarding the findings.

  • Date: Tuesday, June 14th 2011
  • Time: 10 a.m. to 11:00 a.m. (EST)
  • Location: National Press Club; 529 14th Street NW, Washington D.C. 20045

Save the date on your calendar and expect a formal invitation coming soon or RSVP NOW.

Visit for more information about The Arc.

About The Arc: The Arc is the nation’s leading and largest organization for people with intellectual and developmental disabilities. The Arc works through a grassroots network of more than 700 community-based chapters across the country, serving individuals and their families across the lifespan and regardless of diagnoses. Visit for more information about The Arc’s mission, advocacy efforts and issues concerning the I/DD community.

About FINDS: The FINDS survey is the first national survey of its kind conducted that asked individuals with intellectual and developmental disabilities (I/DD), their families and caregivers questions regarding their needs and access to services. The survey revealed responses from more than 5,000 caregivers and 558 people with disabilities. Questions were asked relating to services, living situations, education, employment and community participation. The insights gleaned from this survey provide a comprehensive assessment of their true needs and provide a much greater understanding of what services are available, what gaps exist and what action needs to be taken at a Federal, state, local and individual level in the future in order to assure that this large population is no longer left in the shadows of their communities. At this event, The Arc will release a summary of the top data points called Still in the Shadows with Their Future Uncertain.