November 15, 2011

Awarded Funding for Innovative Evidence-Based Practices

Three Family Organizations in our Network Awarded Funding for

Innovative Evidence-Based Practices!

Three family organizations, all of which are either Family Voices State Affiliates and/or Family to Family Health Information Centers, have been awarded funding from the US Department of Health and Human Services (US DHHS) for expanding innovative, evidence-based practices for improving systems of care for children and youth with special healthcare needs (CYSHCN).

Family Voices of Minnesota, the Family Voices State Affiliate for Minnesota, will implement the Peer Support Medical Home Project.  Through this project, FV-Minnesota will (1) engage and empower families of CYSHCN in underserved and underrepresented populations and build and strengthen the capacity of families to better navigate the health care system and be effective partners with their child or youth's medical home; (2) integrate parent to parent peer support into the medical home by collaborating with clinics and health providers in 7 medical home clinics; (3) expand the knowledge of health care providers by providing information about the efficacy of parent to parent peer support as a best practice and an important component of family centered care for CYSHCN; (4) create partnerships throughout the state through outreach activities with families, health professionals, Title V, schools and other appropriate agencies and organizations; and (5) be led by experienced family leaders who are knowledgeable about their communities and have an understanding of the health care system and polices.  Their project will replicate the evidence-based model of parent to parent peer support and integrate it into the medical home to improve the ability of families from underserved and underrepresented populations to navigate the health care system and increase their involvement in program planning and policy development thus improving the system of services for CYSHCN.  Family Voices of Minnesota will expand their current Parent to Parent Peer Support program by partnering with seven statewide medical home clinics that serve underserved and underrepresented families of CYSHCN and disabilities. 

PACER, the Family to Family Health Information Center for Minnesota, will implement the Evidence- Based Health Initiative: Parents as Teachers Pediatric Resident Training Program (PRTP).  The purpose of the project is to improve services to CYSHN by providing training and resources to pediatric residents on the principles of medical home. PACER's Family to Family Health Information Center staff will partner with Title V staff to ensure training content reflects current state policy. The design and implementation of the project will be conducted collaboratively with the University of Minnesota's Medical School. PACER's current evidence-based Pediatric Resident Training Program, which has been in existence for over 20 years, will be expanded to include updated components on cultural competence and transition to the adult system of services. Diverse families and youth will be recruited to participate in the program. The training will also be adapted for use in training state Maternal and Child Health staff. New project resources will be developed, including a replication toolkit. The project will build on PACER's 30 years of successful experience providing innovative resources, training, and support to families of children with special health care needs and all disabilities.

The Statewide Parent Advocacy Network, the Family Voices State Affiliate and Family to Family Health Information Center for New Jersey, will implement the Innovative Evidence-Based Model for Improving Services for Immigrant Families of CYSHCN, building on its existing State Implementation Grants for CYSHCN and for CYSHCN with ASD & other DD.  The project will (1) engage Federally Qualified Health Centers (FQHCs) and immigrant parents in targeted communities to participate in medical home improvement and sustainability through Community of Care Learning Collaboratives; (2) increase the extent to which FQHCs screen children to identify special needs and connect families to services that are organized for easy use; (3) enhance coordination of care among multiple care coordination/case management systems; and (4) enhance the caregiving, partnership, system navigation, and advocacy capacity of immigrant families and their availability to partner on medical home teams and in systems change efforts including our Statewide Community of Care Consortium for CYSHCN.  In partnership with the NJ Departments of Health, Human Service, and Children and Families; the American Academy of Pediatrics-NJ Chapter; the NJ Primary Care Association; the NJ Immigration Policy Network; and SPAN's F2F and Parent to Parent projects, we will "marry" effective, evidence-based approaches to medical home implementation; engagement, support and leadership development of immigrant parents; and care coordination approaches into an enhanced medical home approach that, when evaluated, can serve as a model for other communities working with underserved immigrant parents of CYSHCN in high-need communities.

For more information, go to (the HRSA-funded grant website for D70 grantees) and scroll down to each organization.