July 09, 2014

July 9 Washington DC Update

July 9 Washington DC Update

 Washington DC Update 7/9/14

{Don’t forget to check out the Family Voices/NCFPP ACA webpage, and the latest blog post: Why Oral Health is Important for Children with Special Needs & How to Access It, at http://www.fv-ncfpp.org/blog/.}

[Note below that there are three webinars today, Wednesday, at 1:30, 2:00, and 3:00 pm ET.]

Greetings from Washington!  The House and Senate were both in recess last week, but government agencies and nonprofit organizations were busy issuing various resources of interest. This issue of the Washington DC Update lists resources related to the ACA, Medicaid/CHIP, transition issues, nutrition, diabetes, traumatic brain injury, and mental health, among others.


CHIP Policy and Advocacy Webinar 

Wednesday, July 9, 1:30-2:30 pm ET.

The Children’s Hospital Association, the American Academy of Pediatrics, and the Georgetown Center for Children and Families are sponsoring a webinar about national efforts to extend the Children's Health Insurance Program (CHIP) beyond September 2015, when federal funding for the program is currently slated to end, and how state-based advocates can become involved in these efforts. Presenters will provide an overview of CHIP’s success at meeting children’s health care needs, the potential impact on states and families if CHIP should expire, and opportunities for state-based partners to contribute to current advocacy efforts to extend the program. There will be time for audience questions. The webinar will be recorded for later reference. For more information and to register, click here.

In Spanish: Utilizing Your Health Insurance for a Healthier Life 
Wednesday, July 9, 2:00 pm ET.

The Centers for Medicare & Medicaid Services (CMS) and U.S. Department of Health and Human Services’ (HHS) Office of Minority Health are conducting a webinar on health insurance literacy and the Marketplace, intended to help participants understand how health insurance works, and how to use insurance coverage. Health insurance literacy resources will also be shared, and there will be a brief update on the Health Insurance Marketplace.

No registration required. Please join 10 minutes before start time.


Dial-in number: 1(888)-455-1840
Conference number: PW7052714
Audience passcode: 9529414

Participants can join the event directly at:


This meeting will be recorded and you may access the Net replay of this call at:


This recording will be available for 30 days, ending August 8, 2014.

An announcement for this webinar in Spanish can be found at:


Needs Assessments: Opportunities for Collaboration across Multiple Stakeholders Wednesday, July 9, 3:00-4:00 pm ET.  
Sponsored by the Partnership for Action to End Health Disparities, in partnership with the Community Action Partnership, and the National Network of Public Health Institutes, presenters will discuss key elements of assessments used by Community Action Agencies, hospitals, and public health programs to inform community benefits and services programs. For more information and to register, click here.

Engaging Youth as Advisors on Policy and Program Development
Thursday, July 10, 3:30-4:30 pm ET.

This webinar, jointly sponsored by Family Voices/KASA and the National Center for Family Professional Partnerships, is designed to introduce strategies for creating effective and sustainable youth councils. Youth themselves, from the YEAH Council of Family Voices New Hampshire, will discuss ways to engage youth as policy and program advisors and why it is important. Registration will close at 2:30 ET on July 10.

Register via the following link to receive connection details: 


Contact Leslie Carroll of Family Voices with any questions.

Organizational Considerations for Successful Implementation of Peer Support Services 

Friday, July 11, 3:00-4:30 pm ET.

Sponsored by the National Federation of Families for Children’s Mental Health.

In May, 2013, the Centers for Medicare and Medicaid Services (CMS) and the Substance Abuse and Mental Health Services Administration (SAMHSA) released a joint informational bulletin that clarified the definition of "Peer" to include adults, families, and youth. Many organizations are working with their states to expand current peer services accordingly. This webinar will look at the growth of Peer Support and the organizational considerations necessary for successful implementation of its different types. For more information, and instructions on joining the webinar, click here. To join by phone only, dial 1-888-727-2247 and enter the conference ID number 5433540#. If you have any questions, contact Kelle Masten at kelle.masten@nasmhpd.org or at 703-682-5187.

Innovative State and Local Crisis Response Systems

Tuesday, July 15, 2-3:30 pm ET.

The Substance Abuse and Mental Health Service Administration (SAMHSA) is hosting a series of webinars on how to expand community-based crisis response services and systems. The series began on May 7, 2014, and will run every two weeks through July 15. The webinars describe new and emerging crisis response practices across a continuum of need that includes pre-crisis planning, early intervention, crisis stabilization, and post-crisis support. In addition, the webinar series explores the types of outcomes sought for different approaches, how these approaches are financed, and provide State and local examples. Click here to register.

Special Enrollment Periods and Resources for the Uninsured

Wednesday, July 16, 1:00-2:00 pm ET.

Sponsored by the HHS Center for Faith-based and Neighborhood Partnerships.

Submit questions to ACA101@hhs.gov by July 15 at 12 pm ET.

To join by phone only, dial 1-646-307-1721, and enter Access Code: 270-706-869. Pin Number is the # key. Or register here.

Medicaid and CHIP Outreach and Enrollment Considerations in Immigrant Communities

Thursday, July 17, 3:00-4:30 pm ET.
The HHS “Connecting Kids to Coverage National Campaign” is sponsoring this webinar to explain the Medicaid and CHIP eligibility rules and enrollment procedures that apply to immigrants, provide outreach strategies for ensuring the most effective communication with families, and share new resources and ideas for the upcoming Back-to-School season.

Find additional details and register here.

Partnering with Patients, Families, and Communities to Link Interprofessional Practice and Education

Tuesday, July 22, 1:00-2:00 pm ET.

The Macy Foundation will hold a web conference to discuss moving beyond what is typically thought of as “patient engagement” efforts to integrate patients and families as partners throughout the health professions education and delivery system. The webinar will address recommendations in a new report – Partnering with Patients, Families, and Communities: An Urgent Imperative for Health Caredeveloped from an April 2014 meeting of leaders in health professions education and practice, and consumer organizations. Register here.

Mobilizing for Oral Health Equity: An Interdisciplinary Effort

Tuesday, July 22, 1:00-2:00 pm ET.

Sponsored by the Mid-Atlantic Regional Health Equity Council and the Society for Public Health Education. Speakers will provide a definition of oral health disparities/equity and an overview of its root causes. This will be followed by recommendations on mobilizing for oral health equity through enhanced leadership, networking, and collaboration. Register here

Medical Diagnosis and Health Care Justice
Wednesday, July 30, 2:00 pm ET

Sponsored by The Arc, this webinar will discuss medical diagnostics and healthcare justice, with leaders from the US Access Board and the Disability Rights Education & Defense Fund. Attendees will learn updates on the current medical diagnostics rule as well as how to educate others in their communities about health care provider misconceptions and stereotypes. Register here.


Both houses of Congress were in recess last week.

Hearing on Incorporating the Patient Perspective in Health Care

On Friday, July 11, at 9:00 am, the Subcommittee on Health, of the House Energy and Commerce Committee, will hold a hearing entitled “21st Century Cures: Incorporating the Patient Perspective,”  which will be available in real time on the committee’s website. Witnesses have not yet been announced, and no further information about the subject is currently available, but will probably be posted soon here. This hearing is part of a series on “21st Century Cures.”  Earlier topics were on digital health care and modernizing clinical trials. See http://energycommerce.house.gov/hearings.

ACA NEWS AND INFORMATION [See below for ACA resources.]

Urgent Need to Help Consumers Resolve Inconsistencies

This just in from the Center for Budget and Policy Priorities…Starting in late July or early August, subsidies could be reduced or terminated for hundreds of thousands of consumers who enrolled in health coverage through www.HealthCare.gov, if they have not submitted required documents to verify their income and/or citizenship or immigration status. Navigators, certified application counselors, and others helping consumers with eligibility and enrollment in states using the Federally Facilitated Marketplace (FFM) can play a critical role in ensuring that consumers can maintain their coverage. Click here for more information.  


Medicaid Services for Children with Autism Spectrum Disorder 

On July 7, the Centers for Medicare & Medicaid Services (CMS) released an informational bulletin with respect to services available under the Medicaid program to children with autism spectrum disorder (ASD). The Informational Bulletin can be accessed on Medicaid.gov under Federal Policy Guidance at http://www.medicaid.gov/Federal-Policy-Guidance/Downloads/CIB-07-07-14.pdf

SAMHSA Toolkit: Community Conversations about Mental Health

The Substance Abuse and Mental Health Services Administration has launched a new website and toolkits, available in both English and Spanish, to encourage community conversations about mental health. In addition, MentalHealth.gov and MentalHealth.gov en Español provide information and resources about prevention, treatment, and recovery from mental health conditions. Recently, Associate Director of the HHS Office of Minority Health Mayra E. Alvarez posted this blog post to encourage Hispanic families to talk about mental health issues.

Expansion of Undiagnosed Disease Network

On July 1, the National Institutes of Health (NIH) announced that it is expanding its Undiagnosed Disease Network, adding six new sites– Baylor, Stanford, Vanderbilt, UCLA, Duke, and several Boston hospitals, including the Boston Children’s Hospital. Read more about it in this article from the Los Angeles Times. Instructions on applying to the UDN on behalf of a patient can be found at rarediseases.info.nih.gov/undiagnosed.


Health Insurance Literacy

“From Coverage to Care” resources from HHS, including health insurance literacy tools and videos, are available (in English and Spanish) at marketplace.cms.gov/c2c.

For questions about health insurance literacy and other Marketplace partner resources, contact Partnership@cms.hhs.gov.

Special Enrollment Periods

Even though open enrollment is over, there are still certain qualifying life events – such as changing one’s place of residence or losing a job – that make people eligible to enroll in new health insurance plans for 2014 through a Special Enrollment Period. This survey will help consumers determine whether they might qualify. Share this information through Facebook.

“Beyond the Basics” Resources

The Center for Budget and Policy Priorities has developed a number of resources that get into some of the more complicated ACA eligibility and enrollment issues.  See http://www.healthreformbeyondthebasics.org/category/resources/ and http://www.healthreformbeyondthebasics.org/.


Fact Sheets on Medicaid Basics

The Center for Medicaid and CHIP Services (CMCS) has just published new or updated fact sheets aimed at helping consumers understand the basics of Medicaid and CHIP eligibility, benefits and enrollment processes. The fact sheets feature a variety of images, are available in English and Spanish, and can be customized with your organization’s name and contact information. There are two sets of fact sheets – one tailored for states that have expanded Medicaid and the other for states that have not expanded Medicaid. There are also specific fact sheets for use in American Indian/Alaska Native communities, for whom different rules may apply.

The full set of fact sheets can be found at http://www.medicaid.gov/AffordableCareAct/Medicaid-Moving-Forward-2014/Basics-for-Consumers/Fact-Sheet-Basics-for-Consumers.html, along with instructions on how to get help customizing them with a local phone number, logos, and other information (although they can be used without customization as well).

Fact Sheets on Programs Serving Individuals with Traumatic Brain Injury and Their Families

The National Association of State Head Injury Administrators released three fact sheets describing state and federal programs that serve individuals with traumatic brain injury (TBI). The fact sheets include state-by-state information on programs and funding sources, including 1915(c) Medicaid waivers that may pay for respite and provide other family caregiver supports. The fact sheets are:

Living with Diabetes

The Centers for Disease Control and Prevention (CDC) has issued a new on-line resource – New Beginnings: A Discussion Guide for Living Well with Diabeteswhich uses stories about African Americans with diabetes to help group leaders lead discussions about the emotional side of living with diabetes, identifying family and social support needs, and developing goal setting, positive coping, and problem solving skills.

Nutrition Tips

The US Department of Agriculture has developed new resources for its 10 Tips Nutrition Education Series. The new factsheets are about on nutrition for men, women, and adolescents. Learn more

“Data Vignettes” Illustrating Data from the National Survey of Children with Special Health Care Needs

The Georgetown National Center for Cultural Competence has added another story to the Data Vignettes web feature. These Data Vignettes were developed to put faces and names to the data from the National Survey of Children with Special Health Care Needs, and contain links to additional resources related to concepts discussed and a set of questions for discussion. The stories are composites from many families and do not represent any specific family or child. They can be used for personal learning and development or to augment curricula and training activities for health care providers, policy makers, public health professionals, researchers and agency staff. The new vignette about Carol and John looks at the life course of a family and how intergenerational issues can affect the outcomes of a child with special health care needs.

New Toolkit to Help Providers Address Mental Health Challenges of Individuals with Intellectual and Developmental Disabilities 
The Vanderbilt Kennedy Center for Research on Human Development recently issued an on-line toolkit to help primary health care professionals address the mental health needs of individuals with intellectual and developmental disabilities (IDD) (who are disproportionately affected by mental health challenges). While the toolkit was designed to help primary care practitioners care for adults with IDD as they transition from their pediatrician's care, it is applicable to children and youth with IDD as well. The toolkit provides best-practice tools and information regarding the medical and behavioral concerns of adults with IDD resulting from specific medical conditions (e.g., autism, Prader-Willi Syndrome, Fragile X) and includes resources for patients and families. It is based on a peer-reviewed Canadian resource from 2011.

Helping States Connect Health and Social Services

The Commonwealth Fund has issued a new issue brief, written by researchers at the Center for Health Care Strategies, about the components necessary for such an integrated health and social services system and a policy framework to help states establish the infrastructure necessary to support ongoing integration of health and social services, particularly for Medicaid beneficiaries.

Technical Brief on Transition Care for Children with Special Health Needs
The federal Agency for Healthcare Research and Quality issued a Technical Brief on the state of practice and the current literature around transition care for children with special health care needs to describe current practice and to provide a framework for future research. It is available here.

Medicaid Reimbursement for In-Home Care Providers

The Centers for Medicare & Medicaid Services (CMS) released an informational bulletin intended to assist states in understanding Medicaid reimbursement options that will enable them to account for the cost of overtime and travel time that may be compensable as the result of the changes to the Department of Labor’s regulations regarding domestic service employment under the Fair Labor Standards Act (FLSA). The Informational Bulletin can be accessed on Medicaid.gov under Federal Policy Guidance at   

www.medicaid.gov/Federal-Policy-Guidance/Downloads/CIB-07-03-2014.pdf .


In case you missed it:

A Triple Aim Approach to Transition from Pediatric to Adult Health Care for Youth with Special Health Care Needs

This publication provides strategies for facilitating the transition to adult medical care that aligns with the Institute for Healthcare Improvement's Triple Aim to improve clinical outcomes; to improve patient, family, and provider experiences of care; and to decrease per capita costs of care. These strategies include helping patients develop self-management skills, supporting the care team, and helping patients and families navigate the transition process.