April 16, 2015

New Journal Article on Family Voices' Family-Centered Care Assessment Tool

Psychometric Evaluation of a Consumer-Developed Family-Centered Care Assessment Tool

Nora Wells (Family Voices) Suzanne Bronheim (Georgetown University), Stephen Zyzanski (Case Western Reserve University), Clarissa Hoover (Family Voices)

Maternal and Child Health Journal, April 8, 2015

Findings from a study that showed the FCCA tool to be a robust and psychometrically sound instrument for which there has been substantial interest from health care providers, researchers, and family groups. The FCCA provides an important alternative to existing measures of families’ experiences of health care, including the CAHPS, which does not address the full range of topical areas deemed important to families, and the MHFI, which lacks the rigorous psychometric evaluation of the FCCA. The findings from this study also provide compelling evidence of the value of families taking substantive roles as researchers in the development of quality measures. The high level of validity of the family-created questions in this study indicates how consistent the concepts in the developed questions are with the expectations of families across all demographic groups. This model of partnership in research, with consumers themselves in the lead, provides an important model for future quality measure development.