December 10, 2015

Care Coordination for Children and Youth with Special Health Care Needs

For parents of children with special health care needs (CSHCN), it is often overwhelming to manage their children's entire universe of care, from traveling to appointments with multiple providers, to administering treatments and medicine, to managing educational needs and making sense of insurance coverage. In a 2012 survey, families with CSHCN identified care coordination as their top priority, but there often is great confusion over who is responsible for providing care coordination services, who should pay for them, and how such services are reimbursed. A new report, The Care Coordination Conundrum and Children and Youth with Special Health Care Needs, funded by the Lucile Packard Foundation for Children's Health and authored by researchers from the Catalyst Center at the Boston University School of Public Health, discusses why care coordination has been insufficiently financed and reimbursed to date, and what can be done to address these challenges.