March 02, 2016

Precision Medicine Initiative


Precision Medicine Initiative

On February 25, the White House announced several actions and held a summit (video) to advance the president's Precision Medicine Initiative, which seeks to develop individualized medical care. Among the actions was an award of funding to Vanderbilt University, working with Verily (formerly Google Life Sciences) for a pilot project to figure out how to create a massive database to track the health of at least 1 million volunteers by 2019. The pilot project will try to determine how best to attract volunteers, how to collect data, and what information about their own health the volunteers want in return. See this article from the Washington Post.

The administration also released a Draft Data Security Policy Principles and Framework  to protect the health data about volunteers participating in research related to the Precision Medicine Initiative. The document builds on the existing PMI Privacy and Trust Principles. The White House invites public comments on the draft policy through March 25, 2016. See this article from the New York Times.