Tables 7, 8, and 9 Family Voices Survey on Managed Care Family and Child Characteristics of Respondents


Table 7
Family Voices Survey on Managed Care
Family Responses on Individual Satisfaction Items
(N=323)

Satisfaction with Health Services %
Very Satisfied
%
Somewhat Satisfied
%
Not Satisfied
% Needed, Not Available
Medical and Specialty Services
1. Appropriate routine, well-child care (n=280) 67.1 23.2 3.6 6.1
2. A primary care provider with knowledge of my child's special needs (n=291) 54.0 26.8 14.8 4.5
3. Appropriate pediatric specialty care providers (n=281) 59.8 28.1 10.0 2.1
4. Appropriate pediatric in-patient hospital services (n=208) 64.4 28.8 6.3 .5
5. Specialized dental care or orthodontic services (n=197) 40.6 24.9 12.7 21.8
6. Physical therapy services (n=222) 49.5 21.2 13.5 15.8
7. Occupational therapy services (n=212) 38.7 22.2 15.6 23.6
8. Speech therapy services (n=242) 38.4 19.4 16.5 25.6
9. Nutritional counseling (n=141) 39.7 17.0 20.6 22.7
10. Psychological testing (n=131) 29.0 27.5 25.2 18.3
11. X-ray and radiology services (n=212) 63.7 31.6 3.8 .9
12. Laboratory services (n=238) 61.8 31.9 4.6 1.7
13. Genetic counseling services (n=123) 50.4 24.4 15.4 9.8
14. Emergency room services (n=215) 54.0 37.2 7.9 .9
Mental Health Services
1. Counseling for child (n=93) 24.7 15.1 32.3 28.0
2. Counseling for family members (n=148) 20.9 19.6 27.0 32.4
3. Family support groups (n=159) 16.4 25.8 18.9 39.0
4. Out-patient diagnostic services (n=90) 38.9 28.9 16.7 15.6
5. In-patient psychiatric care (n=42) 23.8 19.0 33.3 23.8
Other Health Services
1. Prescription medications (n=285) 62.5 31.2 5.3 1.1
2. Durable medical equipment (n=152) 39.5 34.9 19.7 5.9
3. Adaptive equipment (n=160) 26.3 28.1 28.8 16.9
4. Disposable medical supplies (n=109) 45.0 26.6 15.6 12.8
5. Nutritional products or special diets (n=105) 36.2 18.1 18.1 27.6
6. Home nursing services (n=84) 32.1 27.4 19.0 21.4
7. Personal care attendant services (PCA) (n=72) 29.2 19.4 15.3 36.1
8. Hospice services (n=24) 29.2 20.8 29.2 20.8


Table 7 (continued)
Family Voices Survey on Managed Care
Family Responses on Individual Satisfaction Items
(N=323)

Satisfaction with Delivery of Care: %
Very Satisfied
%
Somewhat Satisfied
%
Not Satisfied
Communication and Coordination of Care
1. Information about my child's medical needs (n=290) 40.3 40.7 19.0
2. Explanation of medical treatments (n=289) 47.4 41.5 11.1
3. Having time with my child's provider to ask questions (n=290) 54.5 34.5 11.0
4. Family inclusion in decision-making and planning (n=279) 57.0 32.3 10.8
5. Child's participation in decision-making and planning (n=186) 41.4 38.2 20.4
6. Communication between my child's primary care provider and specialty care providers (n=257) 34.2 34.6 31.1
7. Access to a case manager of care coordinator (n=219) 32.0 25.6 42.5
8. Helping the school understand my child's special health care needs (n=229) 19.2 33.2 47.6
9. Information re: current research that might help my child (n=250) 14.0 24.8 61.2
10. TDD services for hearing impaired (n=34) 29.4 23.5 47.1
11. Translator/interpreter services (n=23) 39.1 30.4 30.4
12. Respect for my culture, ethnic identity and religious beliefs (n=177) 62.7 26.6 10.7
Overall Ease of Service Delivery
1. Telephone access to providers (n=283) 45.6 36.7 17.7
2. Access to second opinions (n=242) 39.9 34.3 26.4
3. Ability to schedule timely specialty care appointments/referrals (n=277) 41.9 36.8 21.3
4. Waiting time to approve special services/equipment (n=240) 27.1 32.9 40.0
5. Appeals or grievance procedures (n=136) 15.4 38.2 46.3
6. Coordination of multiple appointments or visits (n=227) 36.6 38.8 24.7
7. Required paperwork to access services (n=249) 32.5 36.1 31.3
8. Handicapped accessibility of physical facilities (n=144) 53.5 31.9 14.6
9. Transition from adolescent to adult services (n=56) 21.4 23.2 55.4
10. Waiting time to schedule appts for primary care (n=275) 53.8 35.3 10.9
11. Waiting time on day of appointment (n=287) 42.9 41.1 16.0
12. Info on what services are covered by child's plan (n=286) 31.8 36.7 31.5
13. Flexibility to use cost-effective alternative services, equipment or providers (n=230) 22.6 30.4 47.0


Table 8
Family Voices Survey on Managed Care
Family Satisfaction with Needed Services:
Comparison of "Very Satisfied" Responses to "Not Satisfied" and
"Needed/Not Available" Responses Combined
(N=323)

Satisfaction with Health Services
(listed in ascending order of satisfaction)
% Very Satisfied % Not Satisfied
and Needed,
Not Available
Medical, Mental Health and Specialty Services
X-ray/radiology (n=212) 63.7% 4.7%
Laboratory services (n=238) 61.8% 6.3%
Prescription medications (n=285) 62.5% 6.3%
Appropriate pediatric in-patient hospital (n=208) 64.4% 6.7%
Emergency room services (n= 215) 54.0% 8.8%
Appropriate well child care (n=280) 67.1% 9.6%
Appropriate pediatric specialty care providers (n=281) 59.8% 12.1%
A primary care provider with knowledge of my child's special needs ( n=291) 54.0% 19.2%
Genetic counseling/testing (n=123) 50.4% 25.2%
Durable medical equipment (n=152) 39.5% 25.7%
Disposable medical supplies (n=109) 45.0% 28.4%
Physical therapy (n=222) 49.5% 29.3%
Specialized dental/orthodontic services (n=200) 41.0% 34.0%
Occupational therapy(n=212) 38.7% 39.2%
Home nursing services (n=84) 32.1% 40.5%
Speech therapy (n=242) 38.4% 42.1%
Nutritional counseling (n=141) 39.7% 43.3%
Psychological testing (n=131) 29.0% 43.5%
Adaptive equipment (n=160) 26.3% 45.6%
Nutritional products(n=105) 36.2% 45.7%
Hospice services (n=24) 29.2% 50.0%
Personal care attendant services (n=72) 29.2% 51.4%
In-patient psychiatric care (n= 42) 23.8% 57.1%
Family support groups (n=159) 16.4% 57.9%
Counseling for family members (n=148) 20.9% 59.5%
Counseling for child (n=93) 24.7% 60.2%


Table 9
Family Voices Survey on Managed Care
Family Satisfaction with Delivery of Services:
Comparison of "Very Satisfied" Responses to "Not Satisfied" Responses
(N=323)

Satisfaction with Delivery of Health Services
(listed in ascending order of satisfaction)
% Very Satisfied % Not Satisfied
(Needed, Not Available
not a response option)
Respect for my culture/Ethnic identity/ religious beliefs (n=177) 62.7% 10.7%
Family inclusion in decision making and planning (n=279) 57.0% 10.8%
Waiting time to schedule appts with primary care provider (n=275) 53.8% 10.9%
Time with my child's provider to ask questions (n=290) 54.5% 11.0%
Explanation of medical treatments (n=289) 47.4% 11.1%
Handicapped accessibility of facilities (n=144) 53.5% 14.6%
Waiting time on day of appt (n=287) 42.9% 16.0%
Telephone access to provider (n=283) 45.6% 17.7%
Information about my child's medical needs (n=290) 40.3% 19.0%
Child's participation in decision making (n=186) 41.4% 20.4%
Ability to schedule timely specialty appts. (n=277) 41.9% 21.3%
Coordination of multiple appts (n=227) 36.6% 24.7%
Access to second opinions(n=242) 39.3% 26.4%
Translator/interpreter services (n=23) 39.1% 30.4%
Communication between child's primary care provider and specialty providers (n=257) 34.2% 31.1%
Required paperwork to access services (n=249) 32.5% 31.3%
Info on what services are covered by child's plan (n=286) 31.8% 31.5%
Waiting time to approve special services/equipment (n=240) 27.1% 40.0%
Access to a case manager or care coordinator (n=219) 32.0% 42.5%
Appeals or grievance procedures (n=137) 15.3% 46.7%
Flexibility to use cost effective alternative services, equipment, providers (n=234) 23.0% 47.0%
TDD services for hearing impaired(n=34) 29.4% 47.1%
Helping the school understand my child's special health care needs (n=232) 19.8% 47.4%
Transition from adolescent to adult services (n=56) 21.4% 55.4%
Information re current research that might help my child (n=255) 15.3% 60.0%