One-in-Five


One in Five Families with Children Has at Least One Child with Special Health Care Needs

Family Voices Public Awareness Campaign ‐ Make a Difference

Did you know that more than one in five families has at least one child with special health care needs (SHCN) – 23% of families? Families of children/youth with SHCN typically experience greater stress, struggling to meet the needs of their child in a maze of multiple and complex systems of care. Many families find that insurance is not adequate, care coordination is ineffective, and referrals are difficult.

Across the country families of SHCN get help from health care financing programs, community supports, and family-centered health care practices. Please help others learn more about the needs of children/youth with SHCN and how to help these families.

Please use this media toolkit to spread the word.

Materials

One-in-Five Campaign Handout One-in-Five Infographic One-in-Five English Button
One-in-Five Spanish Button
One-in-Five Public Awareness Campaign Handout: A 1-pager that discusses the needs of families of children/youth with SHCN and the help that Family Voices provides.  Order hard copies.
One-in-Five Infographic: Statistics on needs of families and the supports they receive. Order hard copies.
One-in-Five Buttons: Wear these to community events to help spread the word. Order them here.


Social Media

  • Share our 3-minute video (click on the paper airplane icon paper airplane icon - share video and to share on Facebook or click the left arrow, slash, right arrow icon Left arrow, slash, right arrow to copy the code to embed on your website.)

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  • Follow us on Twitter or tweet these:
    • More than 1 in 5 families (23%) has at least one child with special health care needs. http://bit.ly/11GYgRD
    • About 65% of CSHCN need more complex health services, beyond prescription medications. http://bit.ly/1yuyTwy
    • Over 96% of CSHCN have health insurance but the coverage doesn’t meet the needs of 1/3 of CSHCN. http://bit.ly/1t8pqYj
    • Families with CSHCN can get support and resources from Family-to-Family Health Information Centers. http://bit.ly/1yY4YwQ
    • 23.6% of CSHCN have one or more unmet needs for health services or equipment the last 12 months. http://bit.ly/16u6AGs
    • Only 40% of youth with SHCN receive services for transition to adult healthcare, work, independence. http://bit.ly/1BWA383
  • Share our Facebook postings or create your own:
    • More than one in five families has at least one child with special health care needs - 23% of families. That represents approximately 14.6 million children ages 0 to 17. That's nearly 20% (19.8%). The health care needs of these children may be physical, developmental, behavioral or emotional and represent a wide range of conditions including autism, cerebral palsy, developmental delay, intellectual disabilities, depression, learning disabilities, and epilepsy.  Children with SHCN often have more than one condition and functional difficulties in more than one area that impacts their daily lives, such as breathing, communicating, chronic pain, learning, moving around, behavior, or challenges in making and keeping friends.  Their families typically experience greater stress, struggling to meet the needs of their child in a maze of multiple and complex systems of care.  Many families find that insurance is not adequate, care coordination is ineffective, and referrals are difficult. Families of children with SHCN are less likely to have family-centered health care.  Learn more.  http://www.familyvoices.org/page?id=0057