Advocate (previous)

Through its policy team in Washington, DC, Family Voices advocates for federal legislative and regulatory policies that will benefit children and youth with special health care needs (CYSHCN) and their families.  One of Family Voices' main policy goals is the continuation of federal funding for Family-to-Family Health Information Centers (F2Fs), information and referral centers that help families of children and youth with special health care needs to navigate the complex health system.  (Please see below.)  Other issues addressed by Family Voices include implementation of the Affordable Care Act, Medicaid, the Children's Health Insurance Program (CHIP), the Maternal and Child Health Block Grant, TRICARE (for military families), Supplemental Security Income. Family Voices is also working to ensure that the nation is prepared to combat the Zika virus.


Through testimony and letters to Congress about legislative proposals, formal comments to the administration about proposed regulations, and visits with congressional and administration staff, Family Voices strives to ensure that federal policies promote family-centered health care, and advance the health and well-being of CYSHCN and their families.  Toward these ends, the Family Voices policy team also collaborates extensively with national child health and disability organizations, such as the Consortium for Citizens with Disabilities, The Arc, Autism Speaks, the March of Dimes, Easter Seals, the American Academy of Pediatrics, and the Children's Hospital Association, among others. 


Family leaders throughout the country are also engaged in educating Members of Congress about the needs of CYSHCN and their families.


Funding for Family-to-Family Health Information Centers (F2Fs)

A federal program to provide grants to Family-to-Family Health Information Centers (F2Fs) was established by the Deficit Reduction Act of 2005.  Since 2009, $5 million per year has been provided for the program, which funds one F2F in every state and the District of Columbia.  Each F2F receives an annual grant of about $95,000.


Federal funding for Family-to-Family Health Information Centers will expire at the end of federal fiscal year 2017 if new legislation is not enacted to continue it.  The Family Voices policy team and family leaders throughout the country will be working hard throughout the coming months to secure an extension of funding for the important work of F2Fs.


For more information about Family Voices' federal advocacy, please contact:

Janis Guerney, Public Policy Co-Director: 202-546-0558

Brooke Lehmann, Public Policy Co-Director: 202-841-4341

Lynda Honberg, Director of Strategic Partnerships


Washington DC Update

To follow federal issues of importance to CYSHCN and their families, and receive information about related webinars and other resources, please subscribe to the Family Voices Washington DC Update.