Families in Program and Policy (FiPPs)
In 2001 and 2002, Family Voices conducted telephone interviews with Directors of Maternal and Child Health (MCH) programs and Children with Special Health Care Needs (CSHCN) programs in each state, Washington DC, Puerto Rico, and the Virgin Islands in order to learn about the roles for families in Title V programs. Directors were asked about: family participation with MCH special initiatives, HP 2010, Block Grants, advisory committees, and employment; impact of family participation; and support to families and family organizations. An internet questionnaire was distributed to Family Voices leaders to learn their perspective on family participation in Title V. Findings will be compared to a similar study of CSHCN Directors conducted in 1991.
Families in Program and Policy FiPPs MCH Report MCH Report-pdf:
Summary of results of interviews conducted with state Title V MCH Directors/Staff regarding participation of families in program and policy activities. Hardcopies of this report may be ordered through the Family Voices catalog. Please let us know what you think of this report by completing a short survey.
Families in Program and Policy FiPPs CSHCN Report CSHCN Report-pdf
Summary of results of interviews conducted with state Title V CSHCN Directors/Staff regarding participation of families in program and policy activities. Hardcopies of this report may be ordered through the Family Voices catalog. Please let us know what you think of this report by completing a short survey.
Project Q & A Q&A-pdf
General information about the project goals and methodology.
MCH Survey Tool
Questions asked of State MCH Directors by Project Interviewers about family involvement in their programs and policies.
CSHCN Survey Tool
Questions asked of State CSHCN Directors by Project Interviewers about family involvement in their programs and policies.
Questions asked of family leaders to learn more about their perspective on family involvement in CSHCN programs.
Presentation of Survey Findings on Family Involvement in State MCH Programs MCH-ppt
Data results presented at the 2005 AMCHP Annual Conference; includes findings on family involvement in such activities as the Block Grant Process, advisory committees, in-service trainings, special initiatives, state-negotiated measures, etc.; also includes findings on support for families in such activities.
Families in Program and Policy: State Specific Tables of Findings Tables-pdf
State by state responses from 50 states and 3 territories to questions about family involvement in CSHCN programs including reported benefits to programs, contributions to 2010 goals, amount and kind of family involvement in committees kinds of Block grant participation, kinds of supports provided to families and family organizations, family involvement in staff in-service training and employment.
Presentation of Preliminary Data
Preliminary data results on survey findings of family involvement in state CSHCN and MCH programs, presented at the 2003 AMCHP Annual Conference.
Title V Toolbox Toolbox-html
A web-based repository of state resources for family and Title V collaboration. Includes state-specific examples of mission statements, job descriptions, contract language, and other materials to support and strengthen family invovlement in Title V programs.
Family Voices, Inc.
110 Hartwell Ave.
Lexington, MA 02421
Phone: (781) 674-7207
Fax: (781) 674-2851
Family Voices @ Federation for Children with Special Needs
1135 Tremont Street Suite 420
Boston, MA 02120
(617) 572-2094 (fax)
You may also use our Online Contact Form to contact the Project Director.