Employee Benefit Study for Children with Special Health Needs (2002)


This project explores how employers understand the needs of their employees who have children with special health care needs by conducting a study of best practices and carrying out in-depth interviews with employers in four cities - Boston, Cleveland, Miami, and Seattle. In addition, parents were surveyed to find out the kinds of workplace benefits which help them as employees and parents. This project is run by a Consortium including Family Voices, the Center for Child and Adolescent Health Policy at MassGeneral Hospital for Children, New England SERVE, and the Health and Disability Working Group at Boston University.


Workplace Benefits for Families with Special Needs - A Guide for Employees
A guide to help working parents think about employer sponsored benefits and supports. It addresses the kinds of benefits and policies that may be available and describes ways to access these benefits, particularly Health Care Benefits, Work-Life and Employee Assistance Programs, and Flexible Spending Accounts.

Children with Special Needs and the Workplace - A Guide for Employers
A guide that explores how the care of a child with a chronic condition or disability can impact an employee's work life and describes ways in which employers can address the workplace needs of these employees.

Helpful Employee Benefits (pdf)
Highlights of programs and policies identified by families as supportive to them in their roles as productive employees and good parents.

Parent Survey Instrument (pdf)
A survey tool for parents to report the kinds of benefits their employer provides that helps them balance family and work.

Related Information

MassGeneral Hospital for Children: Center for Child and Adolescent Health Policy
A dedicated group of researchers interested in improving the lives of children - in particular those who are poor, minority, or chronically ill - and their families through identifying, developing and supporting effective health care policies and interventions.

New England SERVE
An independent health research and planning organization, dedicated to promoting high-quality systems of care for children with special health care needs and their families.

Boston University: Health and Disability Working Group (HDWG)
A research, technical assistance and training center of the Boston University School of Public Health, previously known as the Medicaid Working Group. The HDWG goal is to improve the delivery of medical, behavioral, and support services to people with a broad range of disabilities and chronic illnesses. The HDWG promotes the exchange of information and ideas between policy makers, providers, and consumers to support the delivery of the best possible services in the most effective manner.

Project Contact

Nora Wells
Family Voices, Inc.
110 Hartwell Ave.
Lexington, MA 02421
Phone: (781) 674-7207
Fax: (781) 674-2851


Betsy Anderson
Family Voices @ Federation for Children with Special Needs
1135 Tremont Street Suite 420
Boston, MA 02120
(617) 236-7210 
(617) 572-2094 (fax)

You may also use our Online Contact Form to contact the Project Director.