National Data Resource Center (DRC)


In partnership with the Child and Adolescent Health Measurement Initiative (CAHMI), Family Voices provides a key role in the development of a National Data Resource Center, an interactive website that allows access to data from national surveys about children's health. Currently the DRC contains information about two surveys:

  • National Survey for Children with Special Health Care Needs (NS-CSHCN), a survey sponsored by the Maternal and Child Health Bureau (MCHB) of the Health Resources and Services Administration (HRSA) and Office of the Assistant Secretary for Planning and Evaluation of the Department of Health and Human Services, conducted from October 2000-April 2002. This survey examines the prevalence and impact of special health care needs among children and to explore the extent to which children with special health care needs (CSHCN) have medical homes, adequate health insurance, and access to needed services. Other topics include care coordination and satisfaction with care.
  • National Survey of Children's Health (NSCH), a survey sponsored by the Maternal and Child Health Bureau (MCHB) of the Health Resources and Services Administration (HRSA) conducted from January, 2003 to July, 2004. This survey examines the physical and emotional health of children ages 0-17 years of age, with special emphasis on factors that may relate to well-being of children, including medical homes, family interactions, parental health, school and after-school experiences, and safe neighborhoods.

Through feedback from many Family Voices family leaders and members, the family perspective has been incorporated into this interactive website. The National Data Resource Center allows families to access information and data that is helpful to policy development at the state and national levels.  Please visit the DRC at www.childhealthdata.org.


PROJECT CONTACT

Nora Wells
Family Voices, Inc. @ ERG
110 Hartwell Ave.
Lexington, MA 02421
P: (781) 674-7207
F: (781) 674-2851

You may also use our Online Contact Form to contact the Project Director.


Background Materials on the DRC

Examples of How Data from the DRC Can Be Used

Materials Related to the Specific Surveys (NS-CSHCN and NSCH)

Data Resource Center Tutorial