National Data Resource Center (DRC)

In partnership with the Child and Adolescent Health Measurement Initiative (CAHMI), Family Voices provides a key role in the development of a National Data Resource Center, an interactive website that allows access to data from national surveys about children's health. Currently the DRC contains information about two surveys:

  • National Survey for Children with Special Health Care Needs (NS-CSHCN) is a national telephone survey conducted for a third time during 2009-2010; previous administrations of the survey took place in 2000-2001 and 2005-2006. It provides estimated prevalence and number CSHCN in the state population, and the estimated percent of households with children having one or more CSHCN under 18 years old.  Topics include:
    • Child’s health and functional status; including current conditions and functioning difficulties
      experienced due to health conditions
    • Child’s health insurance status and adequacy of coverage
    • Access to health care — including types of health care services needed and any unmet needs for care
    • Preventive medical and dental care, and specialty services received
    • Family-centeredness of child’s health care and care coordination
    • Access to Community-Based Services
    • Transition to Adulthood
    • Impact of child’s health on family
    • Demographics of child and family, including age, sex, race/ethnicity, household income, parental education, family structure, primary language spoken in the home
  • National Survey of Children's Health (NSCH), is a national survey conducted by telephone in English and Spanish for a third time during 2010-2012; it was previously administered during 2007–2008 and 2003-2004.It Provides a broad range of information about children’s health and well-being collected in a manner that allows comparisons among states as well as nationally.This survey estimates national and state-level prevalence for a variety of physical, emotional, and behavioral child health indicators in combination with information on the child’s family context and neighborhood environment. Topics include: 
    • Child and family demographics
    • Children’s physical and mental health status
    • Early childhood-specific information (0-5 years)
    • Middle childhood and adolescent-specific information (6-17 years)
    • Health insurance status and type of coverage
    • Family health and activities
    • Access and use of health care services
    • Parental health status
    • Medical home
    • Parent’s perceptions of neighborhood characteristics

Through feedback from many Family Voices family leaders and members, the family perspective has been incorporated into this interactive website. The National Data Resource Center allows families to access information and data that is helpful to policy development at the state and national levels.  Please visit the DRC at


Nora Wells
Family Voices, Inc. @ ERG
110 Hartwell Ave.
Lexington, MA 02421
P: (781) 674-7207
F: (781) 674-2851

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