This page allows you to find information about

Family Voices of Alabama

Contact Information

Susan Colburn
(334) 293-7041
susan.colburn@rehab.alabama.gov
waregfam@aol.com

Gerald Oveson
(251) 438-1609
oveson@bellsouth.net

“At first, the world of disability is so overwhelming. Thank you for taking the time to help me learn about agencies in our state that I never even knew existed. Knowing that there is help to pay for some of the medical services my child needs has helped me to relax and lets us enjoy just being a family.” - a parent

Family Voices of Alabama (FV of AL) provides assistance to families of CYSHCN in a variety of ways, including individualized information and support, trainings, and information sharing at conferences and through various newsletters and listservs. They encourage families to develop individual partnerships with their children’s care providers, and to look for opportunities to impact systems change by working collaboratively with the many agencies in the state that care about services for children and youth with special needs. FV of AL does not receive direct funding for these activities, but is supported through in-kind services provided by such organizations as the Children’s Rehabilitation Service (Title V CSHCN Program).

HIGHLIGHT: Families and Policy-Makers
Last year, Family Voices of AL led a grassroots effort to increase state funding for their Title V program for CSHCN by coordinating and funding a statewide letter writing campaign from families to state legislators. This resulted in the agency receiving the largest onetime increase in funds it has received and prevented the discontinuation of important services to children and families.

Working Together for CYSHCN:
Last year, Family Voices of Alabama increased their involvement in many of the emergency preparedness efforts in AL, both at the local and state level. This included serving on a Department of Public Health task force focused on Special Populations and another workgroup focused on meeting the needs of children who come to the newly created network of Medical Needs Shelters, as well as helping to develop a plan for accessible transportation in the case of a mandatory evacuation from the coast.

BUILDING PARTNERSHIPS: Families and 2010 Performance Measures
FV of AL, in partnership with the AL Title V CSHCN program, continues to provide a mechanism to financially support family involvement in each of the six workgroups for the national performance measures for CSHCN. These workgroups are made up of partners from many agencies across the state all with an interest in CSHCN. Highlights include:

  • Screening: Serving on newly appointed State Newborn Screening Advisory Committee
  • Transition: Serving on steering committee to develop and implement Transition Expo events being held in communities across AL
  • Family/Professional Partnerships: Working with new partners and expanding opportunities for family involvement in Emergency Preparedness efforts
  • Adequate Insurance/Medical Home: Member of Covering AL’s Kids and Families Coalition

 

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