Contact Information
Leolinda Parlin
(808) 282-6348
leolinda@resqconsultants.com
parlinl@yahoo.com
Josie Woll
(808) 373-9713
wolljosie@hawaii.rr.com
Family Voices of Hawai‘i (FV Hawai‘i) helps families and professionals
work together to improve health care for CYSHCN in Hawai‘i. This is done in a
number of ways, including individual support, training, focus groups, surveys,
conferences, and resource guides. Funding to support these activities is provided by
HRSA (Integrated Service System Grant for CSHCN and the MCH LEND), CMS
(Medicaid Infrastructure Grant), and ADD (Family Support 360 Project).
FV Hawai‘i has worked in very close collaboration with the HI Medicaid agency to develop an outreach campaign and materials for consumers related to health plan enrollment, expanded eligibility, new benefits and new coverage groups. These outreach materials were based on feedback from focus groups of family members and other consumers supported by FV Hawai‘i, a process which has now set the standard within the Department. Real families with real stories are highlighted in the materials.
BUILDING PARTNERSHIPS: Families and Policy Makers
FV Hawai‘i has been very active in the DD/MR Waiver Policy Advisory Council,
establishing guidelines for personal assistance services for children. FV Hawai‘i has
conducted the data analysis for the Council, which consists of families, providers and
state personnel. This effort has provided insight into the family needs in developing
the guidelines.
WORKING TOGETHER FOR CYSHCN:
FV Hawai‘i is a partner in the Hilopa‘a Project, along
with the Hawai‘i Department of Health-Children with
Special Health Needs Branch, American Academy of
Pediatrics-Hawai‘i Chapter, and University of Hawai‘i
Department of Pediatrics-Community Pediatrics
Institute. Hilopa‘a (“to braid firmly” in Hawaiian) is an
initiative to build integrated systems of care for
CYSHCN in Hawai‘i.
