Contact Information
Glenda Davis
(402) 934-1488
(800) 284-8520
gdavis@pti-nebraska.org
Nina Baker
(402) 346-9233
(888) 490-9233
nbaker@pti-nebraska.org
Family Voices of Nebraska (FV NE) is hosted by the Parent Training and Information Nebraska (PTI Nebraska), a statewide training, information and support organization for parents in Nebraska who have a child birth through twenty six with special needs. FV NE and PTI Nebraska collaborate and leverage their expertise in early intervention, special education and health services for children with special medical needs to help families and professionals. This is done in a number of ways, including: individual support, training, lending library, listservs, conferences, and surveys. Funding to support these activities is provided by the US and Nebraska Departments of Education and NE Developmental Disabilities Council.
HIGHLIGHT: Building Family Leadership
“ Because of your information, I
was clear, concise and in
control. I only had to swallow
hard one time and did not lose
control once. I am so grateful for
all your help.”
- a parent
- The Arc of Nebraska,
- Learning Disabilities Association of Nebraska,
- Protection and Advocacy,
- Down Syndrome support group,
- Nebraska Federation for Families
The conference was funded by a grant from the Nebraska Developmental Disabilities Council. were 75 in attendance including 59 parents, many of whom have CYSHCN. The evaluations were very positive, and it is hoped that the event can become an annual affair. Some families drove over 500 miles to attend.
ADVOCACY IN ACTION:
Last year, FV NE and PTI
Nebraska:
- Provided assistance for families and professionals on almost 3,000 occasions
- Distributed almost 6,000 newsletters and 52,000 printed materials
- individuals each quarter through listservs
- professionals through participation in 164 meetings
WORKING TOGETHER FOR CYSHCN:
FV NE partners with many other organizations to improve care for CYSHCN.
Highlights have included:
- FV NE facilitated the Title V Five Year Needs Assessment for CSHCN in 2005-2006 and continues to work with the task force that developed the three top priority needs for CSHCN in Nebraska. There is a “Transition” work group charged by the Office of Family Health to develop strategies for this top priority need and FV NE is an active participant.
- FV NE participated in a NE Early Childhood Comprehensive Systems Grant Program meeting to generate ideas about the formation of a task force to enhance health examinations provided through the EPSDT program and to promote Bright Futures guidelines.
