Contact Information
Stacy Justiss
(276) 475-6525
stacyjustiss@msn.com
Family Voices of Virginia (FV of VA) widely disseminates information and resources to families of CYSHCN and the providers who serve them, through meetings and workshops, conferences, direct support, and parent matching. FV of VA has been part of the funded F2F HIC in VA serving families throughout the state, participating in conferences, meetings, material development and information dissemination.
HIGHLIGHT: Training and Support for Emerging Parent Leaders
At a statewide conference in July 2006, FV of VA developed a workshop on how to
negotiate systems of care, and helped participants identify barriers to services and
specific methods for successfully navigating these systems. Parents from throughout
the state had an opportunity to connect during this workshop. Those interested in
helping other parents to access information and resources or becoming more involved
in systems change, had the chance to sign up to receive information from FV of VA
for their own personal use and to assist them and others as they work to improve
services to CYSHCN in their communities.
BUILDING PARTNERSHIPS: Families and 2010 Performance Measures
FV of VA has been very involved with partners working together on activities
focused on the core outcomes for CYSHCN, including:
- Family Participation:
- Working closely with Medical Home Plus, Inc., sharing a family’s perspective on the medical home concept through visiting pediatric practices involved in a medical home improvement project
- Medical Homes / Community-Based Services:
- Collaborating with Parent-to-Parent of VA on a presentation and workshop on “Parent Involvement”
- Serving on the Fairfax Region CCC Advisory Committee and serving as co-chair on the Parent-to-Parent Support subcommittee.
ADVOCACY IN ACTION: Family Support
The following is an example of
effective support that FV of VA
provides on an ongoing basis to the
families of Virginia. A mother had
tried for two years to obtain
Medicaid waivers for her two
adopted children. After receiving
one-to-one support from FV of VA,
including information specific to the
application process, this mother was
able to more effectively navigate the
system, and within 3 months obtained
a waiver to provide in home personal
assistance for her children.
WORKING TOGETHER FOR CYSHCN:
FV of VA collaborates with many parent led organizations in VA:
- Parent Education and Training Information Center
- The Arc
- Title V: Care Connections for Children
- Waiver Network
- State Dept of Education
- Dept of Mental Health and Mental Retardation
- VA INFO Coalition made up of over 100 members serving families of CYSHCN
Useful Links
- Virginia Department of Mental Health, Mental Retardation and Substance Abuse Services
- Tidewater Down Syndrome Association
- Virginia Board for People with Disabilities
- Department for Rights of Virginians with Disabilities
- Children with Special Health Care Needs
- Parent Educational Advocacy Training Center
- Autism Program of Virginia
- Brain Injury Association of Virginia
- Virginia Institute for Developmental Disabilities
- People with Attentional and Developmental Disabilities Association
- Epilepsy Association of VA
- Virginia Assistive Technology System
- The Arc of Virginia
- Special Olympics Virginia
