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Family Leadership

Growing Your Capacity to Engage Diverse Communities by working with Community Liaisons and Cultural Brokers

A 19-page resource about building relationships with community liaisons and cultural brokers to reach families of CYSHCN, particularly members of under-served groups.

Family-to-Family Health Information Centers

A description of Family-to-Family Health Information Centers, including contact information for centers in the states.

2011 F2FHIC Sharing Notebook

This book contains individual state pages describing a successful activity that each F2F HIC selected to highlight.

Guidelines for Organizing

A brief guide to forming and managing a group to achieve social change.

Family Voices Network in Your State FV Network

For families caring for children and youth with special health care needs, other families are often the best source of information and support. Family Voices Network Members in each state often provide information to other families and/or referral to parent to parent centers or other community resources.

Friday's Child Newsletter

Friday’s Child is a monthly e-newsletter containing information for existing and emerging family leaders, as well as professionals, on topics such as leadership, mentoring, and partnering. Each issue provides news and resources from the Family Voices network and the broader community of families and friends of children and youth with special health care needs. To subscribe, click on the "KEEP INFORMED" button to the right.

Kids As Self Advocates (KASA) Newsletter

A bi-monthly newsletter with information of interest to children and youth with disabilities and special health care needs and those who work with us and care about us. Topic include resources and publications for youth and adult allies, scholarship and conference information, and helpful tools and tidbits on transition issue sand what's going on with KASA members and leaders. To subscribe, click the headline above or send an email to kasa-subscribe@yahoogroupscom

Voices From Home-2006

A 65-page report from Family Voices in the states about the status of health care programs and the activities of FV Network Members to help families of children and youth with special health care needs. Includes charts on partnerships and topic area involvement by state

Voices From Home-2005

An annual ‘state of the state’ publication providing information about the activities and projects of the Family Voices network members in each state to help ensure family-centered, community-based, and culturally competent systems of care for children and youth with special health care needs. Contact information for all network members is also provided.

Strategies for Improving Health Care Financing

The legislative process is discussed to provide a background for improving health care financing systems.

Parents Partnering with Managed Care Plans: A Discussion Guide on Services for Children with Special Health Care Needs

April, 2002. A 7-page pamphlet of topics & questions which can be used as a starting point for families and plans to share perspectives on services for CSHCN and to help guide plans and families in ways to partner together to improve services for this population.

Families in Title V

Materials to document and support family partnership with Title V programs and the Title V block grant.

Families in Program and Policy (FiPPs)

Survey and findings regarding family involvement with state Title V programs, including family participation in CSHCN and MCH initiatives, advisory committees, employed positions, and more.

Title V Toolbox

A web-based repository of state resources for family and Title V collaboration. Includes state-specific examples of mission statements, job descriptions, contract language, and other materials to support and strengthen family invovlement in Title V programs.